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How can we make transition out of his lifelong home easier for Dad?
Dad's lived in the same house for over 50 years and doesn't want to leave, but it's becoming obvious to everyone (including him), that he will have to leave soon. Mom died several years ago. What can we do, if anything, to make the best transition possible?
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October 19, 2009 08:10 PM
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This is tough, I have been through it with my dad, after my mom died. I could write an entire book on this subject. At the end of my dad's life, he had been in assisted living for 2 years, then he was in hospice care for 10 days before he died. My husband and I lived about 3 hours away at that point, so the assisted living facility gave us a room in the center. Basically we moved into the assisted living center for 10 days. It was eye opening. I feel sure it was one of the best facilities anywhere in the area. (My sister and I had visited 27 different centers in the search for an acceptable place for my dad). There was nothing "wrong" with the center, the care was great, it was always clean and the staff seemed to care, but the "walls closed in" so quickly, it was so boring, and really different seeing the true inside of an assisted living center. (to give you some idea: Musak 24/7, hot water got only warm, never enough towels, those with impaired memory couldn't find there own rooms without help, food was not always great, it was possible to be lonely, even when never really alone...)
Here are some of the things I learned during this 2 year period and especially the 10 days at the end of his life.
*Be sure he has a calender that he can see and read, Mark all doctor's appointments on it, and anything else that he needs to know. Mark visits that you are planning and will be making.
*Always be there when he is expecting a visit If it is an absolute emergency then call him and call the staff to let them know you aren't going to be there at the expected time.
*Plan for someone to take him out for at least an hour at least every week, 2-3 times a week would be better, even if it is just a drive around the town.
* Be sure to bring the things he really wants, and be sure to ask him at the right moment. There were things like certain pictures that my sister and I thought my dad would want, but they didn't really matter to him. But there was a clock he wanted to have and we had no idea he was attached to it. A short while after moving my dad asked, "where is my clock?" and I had to ask "which clock?" I was so glad that we still had it, since we had already had an estate sale. It had roses on it, and he did not care for flowers at all, so it never occurred to us that he would want it. Later, as we thought about it, we realized that since it matched my mother's dishes and she had loved that clock, it made sense that it would be very important to him as a transition object.
*Chose your facility with utmost care, and don't be afraid to move him, if it just doesn't work out. This may vary from state to state, but in my state, Texas, there are centers that are assisted level A, centers that are assisted level B, and skilled nursing homes (often referred to as rehab centers now).
We had no idea that Assisted living level A meant, that no matter what, they would not check on him at all after a certain hour in the evening. It sounds crazy, but when my dad fell and hit his head after dinner one evening, they knew he fell, and called us and said that the home health nurse happened to be there, she had covered it with a bandage, and that he appeared to be ok. My brother-in-law went to visit him at breakfast the next day, he was still asleep and his head was bleeding, in fact it had soaked through not only the bandage, but the pillowcase, sheets and mattress. No one had checked on him all night. We were so upset, we moved him that day, of course after we got him to a doctor. He should have had stitches, but it was too late for stitches. Luckily he did recover from this incident. We told the center that we would sue them if they did not let us out of our lease. That was when we learned of the existence of level B assisted living. In level B they will help him evacuate in an emergency, and will check on him around the clock, you may have to request it specifically and you may have to pay extra, but they will check.
As I said I could write an entire book, please feel free to ask me direct questions, if you wish.
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Here are some of the things I learned during this 2 year period and especially the 10 days at the end of his life.
*Be sure he has a calender that he can see and read, Mark all doctor's appointments on it, and anything else that he needs to know. Mark visits that you are planning and will be making.
*Always be there when he is expecting a visit If it is an absolute emergency then call him and call the staff to let them know you aren't going to be there at the expected time.
*Plan for someone to take him out for at least an hour at least every week, 2-3 times a week would be better, even if it is just a drive around the town.
* Be sure to bring the things he really wants, and be sure to ask him at the right moment. There were things like certain pictures that my sister and I thought my dad would want, but they didn't really matter to him. But there was a clock he wanted to have and we had no idea he was attached to it. A short while after moving my dad asked, "where is my clock?" and I had to ask "which clock?" I was so glad that we still had it, since we had already had an estate sale. It had roses on it, and he did not care for flowers at all, so it never occurred to us that he would want it. Later, as we thought about it, we realized that since it matched my mother's dishes and she had loved that clock, it made sense that it would be very important to him as a transition object.
*Chose your facility with utmost care, and don't be afraid to move him, if it just doesn't work out. This may vary from state to state, but in my state, Texas, there are centers that are assisted level A, centers that are assisted level B, and skilled nursing homes (often referred to as rehab centers now).
We had no idea that Assisted living level A meant, that no matter what, they would not check on him at all after a certain hour in the evening. It sounds crazy, but when my dad fell and hit his head after dinner one evening, they knew he fell, and called us and said that the home health nurse happened to be there, she had covered it with a bandage, and that he appeared to be ok. My brother-in-law went to visit him at breakfast the next day, he was still asleep and his head was bleeding, in fact it had soaked through not only the bandage, but the pillowcase, sheets and mattress. No one had checked on him all night. We were so upset, we moved him that day, of course after we got him to a doctor. He should have had stitches, but it was too late for stitches. Luckily he did recover from this incident. We told the center that we would sue them if they did not let us out of our lease. That was when we learned of the existence of level B assisted living. In level B they will help him evacuate in an emergency, and will check on him around the clock, you may have to request it specifically and you may have to pay extra, but they will check.
As I said I could write an entire book, please feel free to ask me direct questions, if you wish.
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October 19, 2009 03:29 AM
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This may not be an option, but when we had to move my grandfather out of his house and into an assisted living facility, we designed the living room at the center just like his at home. As his stay progressed, it was easier to transform the space into something a little more manageable for my grandfather. He was better able to accept the move and the transition. For smaller spaces, choose special items he has cherished through the years to take with him.
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October 19, 2009 04:18 AM
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Aw that's a sad time. I would try of course to bring his favorite things and have them where he can always see them and touch them. Pictures from the house and of the family, his favorite blankets or throws, anything that would remind him of home.
It's also nice to make sure he has lots of visitors. If he gets tired of company, hopefully he'll let you know. I worked in an assisted living home and it seems like some residents never have enough visitors.
Maybe work out a schedule for family members to pick him up and take him out and stuff too. You don't ever want him to feel like he's been moved and forgotten about.
Good luck with helping him get at least a little comfortable.
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It's also nice to make sure he has lots of visitors. If he gets tired of company, hopefully he'll let you know. I worked in an assisted living home and it seems like some residents never have enough visitors.
Maybe work out a schedule for family members to pick him up and take him out and stuff too. You don't ever want him to feel like he's been moved and forgotten about.
Good luck with helping him get at least a little comfortable.
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October 19, 2009 04:21 AM
thanks. It is a sad time, and I appreciate both you and Julieann's comments so far.
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October 19, 2009 06:45 AM
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It's hard for older people to transition to a new environment, they are so used to Thier prior situation and usually have developed habits and ruitines there. Changing to a new place can completely throw thier minds off and it makes what used to be simple tasks like remembering what appartment they live in or what floor they live on a difficult thing to remember. We moved my grandma from her second floor appartment to a new place where her appartment was on the first floor and it just took her so long to remember and figure it out. She would constantly go to the second floor trying to find her home. It's a hard transition on older folks so to make it easier you need to visit them everyday for the first few weeks, this way they have a familiar face and someone to keep them company and help them adjust to thier new surroundings. And try matching thier surroundings to the ones they are used to
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October 19, 2009 03:31 PM
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You've probably already looked into it, but is there anyway to get him some help so that he can stay in his home? A niece or nephew or grandchild who wouldn't mind spending a few hours a week looking after Grandpa in exchange for a place to live?
I know in some states, Illinois for instance, there are programs in place to provide residential assistance to people who can't quite live on their own but don't really need an assisted living facility. One women I know has a parent who is a severe diabetic, so she needs someone to live with her, and take her to medical appointments, but doesn't need full-time care. Since the patient is a Medicare recipient, the state Department of Rehabilitation Services is willing to pay someone to care for her for 10-20 hours a week. In this case, her grown daughter was able to move home and take care of the patient and still earn a little for doing it (so she didn't have to work 40 hours away from home and leave her mother alone).
It seems like a lot of insurance companies would rather pay for part-time care than deal with the expense of assisted living or nursing care and then your Dad could stay in the home he loves and is comfortable in.
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I know in some states, Illinois for instance, there are programs in place to provide residential assistance to people who can't quite live on their own but don't really need an assisted living facility. One women I know has a parent who is a severe diabetic, so she needs someone to live with her, and take her to medical appointments, but doesn't need full-time care. Since the patient is a Medicare recipient, the state Department of Rehabilitation Services is willing to pay someone to care for her for 10-20 hours a week. In this case, her grown daughter was able to move home and take care of the patient and still earn a little for doing it (so she didn't have to work 40 hours away from home and leave her mother alone).
It seems like a lot of insurance companies would rather pay for part-time care than deal with the expense of assisted living or nursing care and then your Dad could stay in the home he loves and is comfortable in.
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