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If your newborn baby suffered from a rare metabolic disorder, would you let doctors use a potential treatment only tested on mice so far?
Baby Z, born in May 08 in Australia, had a very rare metabolic disorder called molybdenum cofactor deficiency, which is fatal. No known cure or treatment existed other than an experimental treatment only used on mice. Her parents had no idea what would happen if this treatment was used on a human, yet they opted to give it a try. Would you have done the same thing? Or are the ethical implications associated with this action too strong?
Source: http://abcnews.go.com/Health/MedicineCuttingEdge/baby-miracle-cure-mice-fda/story?id=9030749&cid=yahoo_pitchlist
By the way: The baby survived and the treatment was dubbed a "Miracle Cure".
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Source: http://abcnews.go.com/Health/MedicineCuttingEdge/baby-miracle-cure-mice-fda/story?id=9030749&cid=yahoo_pitchlist
By the way: The baby survived and the treatment was dubbed a "Miracle Cure".
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November 12, 2009 09:07 PM
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If there were no other treatment alternatives available that had a viable chance of saving my child, then yes, I would open for consideration accepting a treatment for my child that had not yet been used on humans.
This of course does not mean that I would just blindly choose the first alternative handed to me. I would engage in due diligence, studying the treatment, reading up about it, press the doctor heavily for his detailed opinion. If after all that, I were convinced, then I would allow my child to receive the treatment.
This of course does not mean that I would just blindly choose the first alternative handed to me. I would engage in due diligence, studying the treatment, reading up about it, press the doctor heavily for his detailed opinion. If after all that, I were convinced, then I would allow my child to receive the treatment.
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November 10, 2009 05:09 PM
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If it was fatal anyway? Of course I'd try it.
Same reason why cancer patients try various treatments. I'd do whatever I could to help my baby survive if at all possible.
Now, on the other hand, if it were not fatal, I might have a different opinion.
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Same reason why cancer patients try various treatments. I'd do whatever I could to help my baby survive if at all possible.
Now, on the other hand, if it were not fatal, I might have a different opinion.
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November 10, 2009 07:07 PM
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It's hard to say, but I have a hunch that I might not have the courage. One possible outcome might be that your baby will live, but will suffer terrible pain for much longer than otherwise. I salute these brave parents who it seems obvious made the right decision, but I'm not sure I could do it. I might be tempted to ask if they could alleviate the babies pain, sort of like when a person with cancer decides not to take any more treatment.
Hats off to the parents.
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Hats off to the parents.
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